Tuesday, February 9, 2016

LABS FROM YESTERDAY

They are higher but Dr. P wants to give the Cellcept another two weeks before doing another biopsy because Cellcept takes longer to take effect. He doubled the dose when I saw him on the 29th. I'm getting labs again on the 22nd. He told me not to worry but I am so done with this, its not even funny. It will be eight months on the 12th. 

My potassiom is low yet again. Prograf level was 8.5.

ALT
May 20th 83
June 29th 85
July 14th 48
July 28th 46
August 17th 164
September 3rd 73
September 7th 96
September 23rd 56
October 13th 60
November 16th 62
December 15th 57
January 29th 93
February 8th 95

 AST
May 20th 38
June 29th 43
July 14th 18
July 28th 19
August 17th 50
September 3rd 28
September 7th 33
September 23rd 25
October 13rd 20
November 16th 23
December 15th 23
January 29th 34
February 8th 35
 
Alk Phos
May 20th 90
June 29th 85
July 14th 58
July 28th 48
August 17th 75
September 3rd 55
September 7th 67
September 23rd 46
October 13rd 48
November 16th 52
December 15th 64
January 29th 98
February 8th 104

GGT
May 20th 101
June 29th 91
July 14th 103
July 28th 109
August 17th 205
September 3rd 175
September 7th None
September 23rd 134
October 13th 142
November 16th 139
December 15th 142
January 29th 184
February 8th 190

Bili
May 20th 0.9
June 29th 1.0
July 14th 1.1
July 28th 0.9
August 17th 0.9
September 3rd 1.0
September 7th 1.0
September 23rd 0.7
October 13th 0.9
November 16th 0.8
December 15th 0.7
January 29th 0.7
February 8th 0.9

Creatinine
May 20th 1.1
June 29th 1.2
July 14th 1.5
July 28th 1.5
August 17th 1.2
September 3rd 1.5
September 7th 1.4
September 23rd 1.3
October 13th 1.4
November 16th 1.3
December 15th 1.4
January 29th 1.4
February 8th 1.3

Me and my Bella

Thursday, February 4, 2016

REJECTION AND ANXIETY

I am getting labs Monday, can't wait. I have decided if still no good that I may ask Dr. P to give me something for my nerves. I'm not so much worried but just frustrated and anxious that its going on this long with no end.

I'm also tired of waking up feeling bad and so tired every day. This is from the blood pressure meds which I still need. Maybe if my energy would return, my sanity could be saved.

I haven't ran any this week. I'm just so tired; I am taking a break from it and resting. Sleep is a beautiful thing and I can't seem to get enough of it.

Monday, February 1, 2016

ROUND 4 DAY 3

I woke up to everything aching and still feel this way. I have been royally tired today also. I have days like this; I blame the drugs. When this happens, I just try to take it easy and rest.

Dr. P told me to keep running; I told him I was tired. He said the only way to help that was to keep running.

The good news is my stomach feels ok and I haven't taken any Zofran so far.

I set up my appointments this morning. I am getting labs again on the 8th and seeing Dr. P April 15th.

Sunday, January 31, 2016

ROUND 4 DAY 2

My stomach felt weird yesterday at work so I took a Zofran. It made me sleepy but my stomach felt better after. I was still sleepy when I got off but wanted to run so I did. I ran/walked three miles.

The Cellcept isn't making me as sick as it did in the beginning when I first started taking 500mg in June. It dose make me a little nauseous now on 1000mg but not nearly as bad as it did then. Maybe my body has gotten better used to it. I think with the Zofran, I will be ok and get through the next two weeks just fine.

It's not as obnoxious as Prednisone. I am a little disappointed that I went through all that with the Prednisone and it didn't work but it is what it is. All I can do is keep moving forward and keep taking this one day at a time.

The good news is I haven't been in the hospital yet but if It would make this go away any faster, I would be all for it. At first I didn't want anything to do with being admitted but that was seven months and a bunch of Prednisone ago. I couldn't care less anymore. For now we'll see what the Cellcept dose. If this doesn't do it then we'll have to do another biopsy to reassess the situation.

Five months till my big quarter century anniversary. My goal and hope is to be done with this foolishness by then. I want to have a happy and healthy Starla that day. Dr. P says he thinks we can probably do that. He's never been wrong before, we'll see!

Friday, January 29, 2016

EMORY VISIT AND REJECTION

I saw Dr. P this morning and my numbers have gone up. Rather than subjecting me to more Prednisone, he doubled my Cellcept. He said get labs again in two weeks and see him again in three months. If no change in two weeks, we may do another biopsy.

He said there is also IV steroids we could do but didn't want to put me through that yet. I told him after seven months of this, I didn't care. I said I just want to kill my immune system and call it a day.

He told me not to worry that we would get it taken care of. I believe him but just want it to be over.

When I started taking Cellcept, it made me real nauseous all the time. I asked him what I could take if that happened with this. He put me on Zofran.

Needless to say Prednisone stays the same. I think I am on round 4 with this rejection, 7 months.

We can keep doing this the "easy" way or a harder way but one way or another its going to go away!

ALT
May 20th 83
June 29th 85
July 14th 48
July 28th 46
August 17th 164
September 3rd 73
September 7th 96
September 23rd 56
October 13th 60
November 16th 62
December 15th 57
January 29th 93

AST
May 20th 38
June 29th 43
July 14th 18
July 28th 19
August 17th 50
September 3rd 28
September 7th 33
September 23rd 25
October 13rd 20
November 16th 23
December 15th 23
January 29th 34

Alk Phos
May 20th 90
June 29th 85
July 14th 58
July 28th 48
August 17th 75
September 3rd 55
September 7th 67
September 23rd 46
October 13rd 48
November 16th 52
December 15th 64
January 29th 98

GGT
May 20th 101
June 29th 91
July 14th 103
July 28th 109
August 17th 205
September 3rd 175
September 7th None
September 23rd 134
October 13th 142
November 16th 139
December 15th 142
January 29th 184

Bili
May 20th 0.9
June 29th 1.0
July 14th 1.1
July 28th 0.9
August 17th 0.9
September 3rd 1.0
September 7th 1.0
September 23rd 0.7
October 13th 0.9
November 16th 0.8
December 15th 0.7
January 29th 0.7

Creatinine
May 20th 1.1
June 29th 1.2
July 14th 1.5
July 28th 1.5
August 17th 1.2
September 3rd 1.5
September 7th 1.4
September 23rd 1.3
October 13th 1.4
November 16th 1.3
December 15th 1.4
January 29th 1.4

Wednesday, January 27, 2016

MY RUN YESTERDAY

When I got home yesterday it was sprinkling but I wanted to go run anyway so I did. I ran/walked three miles. I took today off.

I can't wait till Friday. I hope my numbers are still stable and he lowers my Prednisone. 

Sunday, January 24, 2016

THREE MILES

I did a yoga beginner video; it is harder than it looks. I couldn't do some of the moves. My body doesn't move that way. I think I need something under beginner!

After that I went running. I ran/walked 3 miles. I haven't gone that far in months before being on these other two blood pressure meds.

Friday, January 22, 2016

HERE'S TO TRYING SOMETHING NEW

We're supposed to get some freezing rain and snow tonight. I don't know how much of that is true but guess we'll see in the morning. It has been raining but not yet cold enough to freeze.

I'm glad I went ahead and ran yesterday. I may run on the treadmill later or do my weights. I want to try yoga; I am told it's good for the joints. Maybe it will help my running some.

My blood pressure was good this morning and I actually had energy. I was almost bouncing off the walls at work but am kind of tired now.

What's not cool is that I've gained some more weight, bringing me to 30lbs since I started taking Prednisone. I'm now at a number I've not seen before; this needs to stop. I've been running all this time and eating right but I guess that means nothing while on Prednisone.

Small temporary price to pay to keep Starla healthy!

Thursday, January 21, 2016

MY RUNNING AND HOW IT STARTED

I have been running on and off since 2006. I had never ran a mile before and couldn't make it half way without having to stop. After I made the first mile, I had to know how much farther I could go. A little over a year after I started, I ran a marathon.

In 2008, I started having problems with my liver and kidney numbers. My hip was also in constant pain for three years. I had to be put on pain meds. I stopped running because walking most days was too painful. I was always tired from the blood pressure med I was on then.

The hip pain went away and I was put on a different blood pressure med. I started again and stopped several times after this. I started again March 2014 and I have been doing it since. I started to feel good again and had some energy for the first time in forever. I started to remember why I loved running so much. I was even starting to make some progress with it.

Its been harder now while on these meds. My progress has taken a step backwards. I decided to keep doing it anyway because I couldn't do it for so long and thought I would never be able to do it again.

So even with this little set back, I would rather be here than where I was a few years ago, in pain every day.

btw, I get asked all the time dose running hurt Starla in anyway. No, infact, doc encourages this insanity all the way.

Tuesday, January 19, 2016

BYE BYE REJECTION..ALMOST HOME

I ran yesterday but took today off to rest. I came home from work and took a really long nap. This running every other day is working out better for me for now.

Today, my back, where my kidneys are at has been hurting. I've been drinking all my water and juice on top of that so they should be getting good and flushed out. 

I see Dr. P next Friday; I can't wait. Each set of labs brings me one day closer to being out of all this mess. If he tells me my labs are still ok and lowers my Prednisone, I will probably cry or scream from excitement.

I haven't been so much worried about Starla; she's proven she can handle her own but Prednisone and my body aren't playing well together. My coordinator told me in the beginning that some people have a hard time on Prednisone and others love it. I think it is the devil in pill form.

Just to give yall a visual of one of the side effects, my adorable chipmunk cheeks.